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Posts Tagged ‘pseudo-science

Burden of proof: Should evidence determine policy?

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My latest piece for the New Humanist

A growing number of activists are calling for science to play a larger role in policy. But will it work? Richard Wilson asks the experts

In the latter days of the last Labour government, then Home Office minister Vernon Coaker introduced a law designed to enable the prosecution of those who paid for sexual services. The government had published a lengthy report, “Tackling Demand for Prostitution”, arguing that evidence showed such a change could reduce the violence and exploitation suffered by commercial sex workers.

In the House, Liberal Democrat science spokesman Dr Evan Harris raised concerns that the evidence in the report had not yet been published – and could therefore not be properly scrutinised. Harris cited the fact that the Royal College of Nursing had expressed concern that further criminalisation could actually be counterproductive, driving victims of sexual exploitation further underground, and away from where they might seek help. There was, Harris argued, a need to examine more thoroughly the evidence on which the proposed legislation was based. “We are looking at publishing the evidence,” replied the Minister, but “in the end, you pick the evidence which backs your argument.”

To those familiar with the scientific method this cherry-picking of data to support a preconceived hypothesis is a hallmark of quackery. Watching the debate, “mouth agape”, was Harris’s Parliamentary researcher, and biology graduate, Imran Khan. Khan was astonished that a government minister could think about, or talk about, scientific evidence in this way. He is now Director of the Campaign for Science and Engineering (CaSE), a lobby group for science and technology education, and cites this tale as a textbook example of “policy-based evidence-making” – when evidence is chosen only to support or defend an already decided policy. Khan is one of a growing cadre of scientifically literate activists who see it as their job to root out this kind of back-to-front thinking, and to promote instead “evidence-based policy-making”, where rigorous, reputable and, crucially, publicly available evidence plays more than merely a fig leaf role in public policy. These include prominent public figures like Khan’s old boss Harris, who writes the Political Science blog for the Guardian, science writer and scourge of the chiropractors Simon Singh, and the Guardian’s Bad Science columnist Dr Ben Goldacre.

Read more at the New Humanist

 

Written by Richard Wilson

January 6, 2012 at 4:57 pm

“He never has to know the actual facts of any issue; instead he’s equipped himself with a persuasive ploy which enables him to make non-experts believe he knows more than experts.”

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Here’s Plato’s take on experts, evidence, and evidence of expertise. These words were first written more than 2,000 years ago – it seems both intriguing and perhaps also a bit depressing that they still have so much currency today.

The text below is from a dialogue between Socrates and Gorgias, a well-known ‘sophist’ who made his living from teaching the art of persuasion – aka “rhetoric”. The word ‘sophistry’ is today synonymous with arguments that are superficially plausible, yet nonetheless bogus…

From Plato’s Gorgias

Socrates: …You claim to be able to train up as a rhetorician anyone who’s prepared to listen to your teaching on the subject. Yes?

Gorgias: Yes.

Socrates: And you’ll teach him all he needs to know to persuade a crowd of people – not to make them understand, but to win them over. Is that right?

Gorgias: Yes.

Socrates: Now you claimed a little while back that a rhetorician would be more persuasive than a doctor even when the issue was health.

Gorgias: Yes I did, as long as he’s speaking in front of a crowd.

Socrates: By ‘in front of a crowd’ you mean ‘in front of non-experts’, don’t you? I mean, a rhetorician wouldn’t be more persuasive than a doctor in front of an audience of experts, of course.

Gorgias: True.

Socrates: Now, if he’s more persuasive than a doctor than he’s more persuasive than an expert, isn’t he?

Gorgias: Yes.

Socrates: When he isn’t actually a doctor himself. Yes?

Gorgias: Yes.

Socrates: And a person who isn’t a doctor is ignorant, of course, about the things which a doctor knows.

Gorgias: Obviously.

Socrates: So any case of a rhetorician being more persuasive than a doctor is a case of a non-expert being more persuasive than an expert in front of an audience of non-experts. Isn’t that what we have to conclude?

Gorgias: Yes, in this instance, anyway.

Socrates: But isn’t a practitioner of rhetoric in the same situation whatever the area of expertise? He never has to know the actual facts of any issue; instead he’s equipped himself with a persuasive ploy which enables him to make non-experts believe he knows more than experts.

Gorgias: Doesn’t that simplify things, Socrates? Rhetoric is the only area of expertise you need to learn. You can ignore all the rest and still get the better of the professionals!

Written by Richard Wilson

February 7, 2010 at 2:19 pm

Is it wrong to highlight the deaths of HIV-positive AIDS denialists who reject medications and urge others to do the same?

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In “Don’t Get Fooled Again”, I look at the role played by the media in promoting dangerous pseudo-scientific ideas under the guise of “balance” in reporting. From the mid-1950s onwards, there was a clear consensus among scientists, based on very strong epidemiological evidence, that smoking caused lung cancer. Yet for several decades, many journalists insisted on “balancing” their reports on each new piece of research with a quote from an industry-funded scientist insisting that the case remained “unproven”.

The tobacco industry’s strategy from an early stage was not to deny outright that smoking was harmful, but to maintain that there were “two sides to the story”. In January 1954, the industry issued its now-famous “Frank Statement to Cigarette Smokers” – a full-page advertisement published in 50 major newspapers across the US.

“Recent reports on experiments with mice have given wide publicity to a theory that cigarette smoking is in some way linked with lung cancer in human beings”

the industry noted.

“Although conducted by doctors of professional standing, these experiments are not regarded as conclusive in the field of cancer research… we feel it is in the public interest to call attention to the fact that eminent doctors and research scientists have publicly questioned the claimed significance of these experiments.”

The strategy played cleverly to the media’s penchant for “controversy”, and proved remarkably successful. Long after the matter had been decisively settled among scientists, public uncertainty around the effects of smoking endured.

US cigarette sales continued rising until the mid-1970s – and it was only in the 1990s – four decades after the scientific case had been clearly established – that lung cancer rates began to tail off. Harvard Medical Historian Allan M Brandt has described the tobacco industry’s public deception – in which many mainstream journalists were complicit – as “the crime of the century”:

It is now estimated that more that 100 million people worldwide died of tobacco-related diseases over the last hundred years. Although it could be argued that for the first half of the century the industry was not fully aware of the health effects of cigarettes, by the 1950s there was categorical scientific evidence of the harms of smoking.

The motivations of the AIDS denialists may be very different, but their rhetoric and tactics are strikingly similar. During the early 1990s, Sunday Times medical correspondent Neville Hodgkinson was bamboozled into running a series of articles – over a period of two years – claiming that:

“a growing number of senior scientists are challenging the idea that the human immunodeficiency virus (HIV) causes AIDS”…

“This sensational possibility, now being contemplated by numerous doctors, scientists and others intimately concerned with the fight against the disease, deserves the widest possible examination and debate.”

Hodgkinson declared in December 1993.

“Yet it has been largely ignored by the British media and suppressed almost entirely in the United States… The science establishment considers itself on high moral ground, defending a theory that has enormous public health implications against the ‘irresponsible’ questioning of a handful of journalists. Their concern is human and understandable, even if we might expect our leading scientists to retain more concern for the truth while pursuing public health objectives.”

As with the tobacco industry’s “scepticism” over the link between smoking and cancer, the views promoted by Hodgkinson tended to focus on gaps in the established explanation (many of which have since been filled) rather than on any empirical research showing an alternative cause. But he did use one of the recurrent rhetorical motifs of the AIDS denial movement – highlighting the case of an HIV-positive “AIDS dissident” who refused to take anti-retroviral drugs but remained healthy.

Jody Wells has been HIV-positive since 1984. He was diagnosed as having AIDS in 1986. Today, seven years on, he says he feels fine with energy levels that belie his 52 years. He does not take the anti-HIV drug AZT…

He feels so strongly about the issue that he works up to 18 hours a day establishing a fledgling charity called Continuum, “an organisation for long-term survivors of HIV and AIDS and people who want to be”. Founded late last year, the group already has 600 members.

Continuum emphasises nutritional and lifestyle approaches to combating AIDS, arguing that these factors have been grossly neglected in the 10 years since Dr. Robert Gallo declared HIV to be the cause of AIDS.

Tragically – if predictably – Jody Wells was dead within three years of the article being written.

Although Hodgkinson left the Sunday Times in 1994, his articles on the “AIDS controversy” continued to be disseminated online, lending valuable credibility to the denialist cause – and have been credited with influencing Thabo Mbeki’s embrace of AIDS denial in the early part of this decade.

When, in 2000, President Mbeki invited several leading denialists to join his advisory panel on HIV and AIDS, Hodgkinson was one among a number who published articles in the South African media praising the decision. Writing in the New African, Hodgkinson called for “a humble, open, inquiring approach on all sides of this debate” – whilst simultaneously declaring that “AZT is a poison” and denouncing “the bankruptcy of AIDS science”.

Hodgkinson also wrote for Continuum’s magazine, which, following Jody Wells’ death was edited by HIV-positive medication refusnik Huw Christie. Christie defiantly launched the “Jody Wells Memorial Prize” (recently satirised here by Seth Kalichman) offering £1,000 to anyone who could prove to his satisfaction that HIV was real.

The magazine finally folded in 2001, with the Jody Wells Memorial Prize still on offer, after Huw Christie died from a disease which fellow denialists insisted was not AIDS-related. “Neither of your illnesses would have brought you down, Huw”, wrote Christie’s friend Michael Baumgartner in 2001. “You simply ran out of time to change gear. We both knew it did not need some ill-identified virus to explain your several symptoms”.

“Huw’s devotion to life has no doubt contributed to a better understanding of AIDS and he saved many who, without hearing a skeptical voice, would have been stampeded down the path of pharmaceutical destruction”

wrote HIV-positive San Francisco AIDS “dissident” David Pasquarelli.

“I readily acknowledge that if it wasn’t for the work of Huw and handful of other AIDS dissidents, I would not be alive today”.

Pasquarelli died at the age of 36 three years later.

The same document includes a tribute from Christine Maggiore, another HIV-positive AIDS “sceptic” who famously rejected medication, and publicly urged others to do the same. As has been widely reported, Maggiore died last month of an illness commonly associated with AIDS.

Connie Howard, writing in today’s edition of VUE Weekly, finds the reaction to Maggiore’s passing distasteful, claiming that: “some AIDS activists are celebrating—not her death exactly, but celebrating a point for their team nonetheless”.

Howard suggests, echoing Hodgkinson, that “Many HIV-positive people who choose an alternative holistic health route defy all odds and stay well and symptom-free for decades”, and that she has “talked to HIV-positive people living well—really well—without drugs.”

According to Howard:

“it’s time that choice and discussion become possible without hate instantly becoming the most potent ingredient in the mix… The vitriol delivered the way of both dissidents and the reporters telling the stories of the dissidents is a crime… Christine Maggiore deserves to have chosen her own path and to be respected for it.”

AIDS denialists and their sympathisers often accuse mainstream AIDS researchers of not being open to “discussion” or “debate”. Yet meaningful discussion is only possible when both sides are operating in good faith. The problem with AIDS and HIV is that the evidence linking the two is so overwhelmingly strong that the only way to maintain a consistently denialist position is to engage in “bogus scepticism” – arbitrarily dismissing good evidence that undermines one’s favoured viewpoint, misrepresenting genuine research in order to create the appearance of controversy where there is none, seeking to give unpublished amateur research equal status with peer-reviewed studies by professional scientists, and treating minor uncertainties in the established theory as if they were knock-down refutations. In such circumstances, reasoned debate simply becomes impossible.

Howard doesn’t specify which AIDS activists she believes “view the death of an AIDS dissident as a victory” or have celebrated Maggiore’s passing, so it’s difficult to evaluate the truth of that particular claim.

But the notion that everyone is duty bound to “respect” Christine Maggiore’s decision to embrace AIDS denial – and counsel others to do the same – does seem a tad problematic.

What Howard chooses not to tell her readers is that Maggiore’s denial extended not only to refusing medical treatment for herself – she also declined to take measures to mitigate the risk of transmission to her young daughter, Eliza Jane, and refused to have her tested or treated for HIV. When Eliza Jane died in 2005 of what a public coroner concluded was AIDS-related pneumonia, Maggiore refused to accept the result, attacked the coroner’s credibility, and claimed that the verdict was biased.

Missing too, is any reference to South Africa, where Maggiore travelled in 2000 to promote her ideas on AIDS and HIV. Maggiore is said to have personally influenced Thabo Mbeki’s decision to block the provision of anti-retroviral drugs to HIV-positive pregnant women. A Harvard study recently concluded that this decision alone resulted in 35,000 more babies being infected with HIV than would otherwise have been the case. Overall, the study concluded, Mbeki’s denialist policies had led to more than 300,000 preventable deaths.

If the Harvard researchers are correct, then AIDS denialism – of which Christine Maggiore was a vocal proponent – has already caused many more deaths than did the war in Bosnia during the early 1990s. Yet the only “crime” that Connie Howard seems prepared to acknowledge in relation to AIDS and HIV is the ill-feeling directed towards Christine Maggiore, her fellow “dissidents”, and the journalists who give space to their denialist views – views which have repeatedly been shown to be based not on science, but on “selective reading of the scientific literature, dismissing evidence… requiring impossibly definitive proof, and dismissing outright studies marked by inconsequential weaknesses”.

Should we “respect” a person’s decision to refuse medical treatment, even if that leads to their own premature death? Arguably we should. But should we also respect that same person’s decision, on ideological grounds, to deny medical treatment to a young child, with fatal consequences? Should we respect their decision to support a pseudo-scientific campaign denying the established facts about a serious public health issue, when that campaign results in hundreds of thousands of deaths?

It is surely possible to agree that Christine Maggiore’s premature death was an appalling human tragedy, whilst pointing out that she was nonetheless dangerously misguided – and that the manner of her passing makes the tragedy all the more poignant.

Christine Maggiore, Jody Wells, Huw Christie, and David Pasquarelli form part of a grim roll-call of HIV-positive medication refusniks who chose to argue publicly that the state of their health cast doubt on the established science around AIDS and HIV, and then went on to die from the disease. For AIDS activists to remain silent in such circumstances would be a dereliction of duty. Publicly highlighting the human cost of AIDS denial, so that similar deaths may be prevented in future, must surely take precedence over showing “respect” to dangerously misguided people, however tragic the circumstances of their demise.

See also: The parallels between AIDS denial and Holocaust negationism

David Gorski on the insidious myth of “balance” in science reporting

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From Science-based medicine

I believe that most reporters in the media do really want to get it right. However, they are hobbled by three things. First, many, if not most, of them have little training in science or the scientific method and are not particularly valued by their employers. For example, witness how CNN shut down their science division. Second, the only medical or science stories that seem to be valued are one of three types. The first type is the new breakthrough, the cool new discovery that might result in a new treatment or cure. Of course, this type doesn’t distinguish between science-based and non-science-based “breakthroughs.” They are both treated equally, which is why “alternative medicine” stories are so popular. The second type is the human interest story, which is inherently interesting to readers, listeners, or viewers because, well, it’s full of human interest. This sort of story involves the child fighting against long odds to get a needed transplant, for example, especially if the insurance company is refusing to pay for it. The third type, unfortunately, often coopts the second type and, to a lesser extent, the first type. I’m referring to the “medical controversy” story. Unfortunately, the “controversy” is usually more of a manufactroversy. In other words, it’s a fake controversy. No scientific controversy exists, but ideologues desperately try to make it appear as though a real scientific controversy exists. Non-medical examples include creationism versus evolution and the “9/11 Truth” movement versus history. Medical examples include the so-called “complementary and alternative medicine” movement versus science-based medicine and, of course, the anti-vaccine movement.

More reaction to the death of Christine Maggiore

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From the Los Angeles Times

Christine Maggiore, who was diagnosed with HIV in 1992, waged a long, bitter campaign denouncing the prevailing scientific wisdom on the causes and treatment of AIDS. She fiercely contested the overwhelming consensus that the HIV virus causes AIDS, and that preventive approaches and antiretrovirals can help thwart the disease’s spread and prolong the lives of those who suffer from it. Her campaign ended this week with her death at age 52. Her challenge, however, continues, as Maggiore’s argument — that scientific consensus, no matter how established, remains subject to objection — runs through debates with profound public policy implications. Does smoking cause cancer? Do human activities contribute to climate change?

It is admittedly difficult to spot the moment when a scientific theory becomes an accepted fact. It took hundreds of years for the Catholic Church to acknowledge the work of Galileo, and it still flinches at Darwin. Meanwhile, the rest of the sentient universe long ago accepted that the Earth orbits the sun, and all but the most determined creationists see the undeniable evidence of evolution at work. Still, science is a discipline of questions, and rarely is a fact established so firmly that it will silence all critics. At the Creation Museum near Cincinnati, the exhibit guides visitors “to the dawn of time” — just 6,000 years ago. That makes for some startling conclusions, not the least of which is that dinosaurs and humans were created by God on the sixth day and lived side by side. Call it the Flinstones theory.

Of course, new questions inevitably emerge from new inquiry and new data. How, then, to judge when a theory becomes fact, when it slips beyond legitimate objection? The test lies in balance: A preponderance of evidence accumulates on one side or the other. Those who contest that evidence must demonstrate the plausibility of alternatives and produce evidence to support them. If the alternatives are implausible, they melt away. Eventually, there is nothing left to uphold the view that the sun is circling the Earth or that natural selection is a secular myth.

In some instances, these debates are interesting but not terribly consequential. But sometimes they are of staggering significance. When the theory in question is about the cause of climate change or AIDS, misplaced skepticism, whether cynical or well-intentioned, can lead to grave results. For years, the South African government joined with Maggiore in denying that HIV is responsible for AIDS and resisting antiretroviral treatment. According to a new analysis by a group of Harvard public health researchers, 330,000 people died as a consequence of the government’s denial and 35,000 babies were born with the disease.

Determined to reject scientific wisdom, Maggiore breast-fed her daughter. Eliza Jane died in 2005, at the age of 3. The L.A. County coroner concluded that the cause of death was AIDS-related pneumonia. Maggiore refused to believe it.

Written by Richard Wilson

January 4, 2009 at 8:14 pm

Quackometer lists Don’t Get Fooled Again among the best books of 2008

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From Quackometer

Whereas Goldacre looked at the dangers of nonsense more from a personal and UK point of view, Wilson takes on a more global and political perspective. He tells us how whole areas of Russian science were hijacked by fake experts during the Soviet era who were more adept at playing political games than honestly seeking truth. Lysenko was the master at this as he held back Russian and Chinese biology and agriculture for decades as ideology became more important than evidence. The consequences of this were the death of millions through starvation.

Rath is portrayed as a modern Lysenko as his ideas have enraptured South African politicians. Again hundreds of thousand have died as a result of ideological AIDS denialist nonsense.

Wilson offers a partial solution to some of the problem by suggesting that the regulation of politicians is too light and that we should be holding them to account through the law not just the ballot box. The self regulation of politicians fails. Lying to us should be punishable in court. In the UK, this suggestion was put forward to MPs, most of whom thought is somehow naive. Only 37 out of 646 MPs backed a proposed law saying that it would be an offense for a politician to knowingly lie or deceive.

Roger Darlington reviews Don’t Get Fooled Again

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From Roger Darlington’s website.

…a highly readable book which represents a refreshing gale of common sense and rationality. Wilson critiques a wide range of contemporary nonsense including:

  • Pseudo-news such as the testimony of a certain ‘Nurse Nayirah’ in 1990 that Iraqi troops occupying Kuwait had removed babies from incubators or the insistence of American and British politicians that Saddam’s Hussein’s Iraq possessed weapons of mass destruction;
  • Pseudo-science such as the efforts to show that smoking does not cause cancer or that white asbestos poses no measurable risk to health or that Trofim Lysenko in the pre-war Soviet Union had revolutionary techniques to transform agriculture or that South African President Thambo Mbeki was right in insisting that the HIV virus does not cause AIDS;
  • Conspiracy theories such as the assertion by ex British agent David Shayler that the London bombings of July 2007 were not the act of terrorists;
  • Relativism which, in its most radical form, asserts that there are no objective facts, only competing strands of subjective opinion, and even in ‘milder’ forms like cultural relativism rejects logic and evidence as ‘western’ or ‘imperialist’ modes of thinking;
  • Religious fundamentalism which requires belivers to accept on faith the absolute truth of a prescribed list of written beliefs even when the relevant texts are obscure, contradictory or contrary to evidence;
  • The justifications given for torture by democratic states like the USA and for terrorism given by extremist groups who likewise believe that the ends justify the means.

Wilson helpfully identifies some of the many factors that permit and indeed encourage such acts of irrationality including wishful thinking, over-idealisation, demonising perceived enemies, moral exclusion, and groupthink. In a spirited defence of rationality, he asserts: “The basic principles of logic, consistency, evidence, and ‘inductive reasoning’ are common to every human society and present in all belief systems”.