Posts Tagged ‘aids denial’
The HIV patient who died after his denialist “friend” persuaded him to stop taking his medications
Of all the tragic individual stories I’ve come across recently about the impact of AIDS denialism, this has to be among the very saddest:
From Denying Aids
Maniotis claims that Lambros was like a brother to him. With such brothers, who needs enemies? The two men became friends, and Maniotis visited Lambros often in the last few years, his influence growing stronger and stronger, ultimately convincing him that HIV did not exist. Lambros stopped taking his medication and the result was devastating. After his death, Lambros’s family and friends found his medication in his refrigerator, untouched since 2007. Instead of his life-saving doctor prescribed medicine, Lambros was convinced to consume Maniotis-promoted vitamins…
HIV ultimately landed him at Howard University Hospital under unclear circumstances. The most likely scenario is that he was found confused and disoriented and was taken to the closest emergency room. He had developed encephalitis, a common outcome of end-stage HIV infection. He was later transferred to Georgetown Hospital, where he died of encephalitis. During his more lucid moments at the hospital, Lambros told his friends he was dying of AIDS…
Charity commission says it has no powers to act against a UK charity putting out dangerous misinformation on AIDS
I recently blogged about a UK registered charity called the “Immunity Resource Foundation”, whose official objectives include:
“To advance the education of the public in the fields of medicine, health care and medical science”
and
“To relieve sickness and assist sick and disabled persons… by providing them with access to information concerning diseases and medical conditions (and in particular AIDS)…”
But the information promoted on the charity’s website includes the claim that “the AIDS edifice is built upon a false hypothesis”, that AIDS “is not an infectious disease” and that “HIV cannot cause AIDS”. The charity also provides links to a range of AIDS denialist websites, including “Living Without HIV Drugs” – which urges HIV-positive patients to stop taking conventional medications.
As has been well-documented elsewhere, this kind of misinformation around HIV and AIDS has already done enormous damage, with a grim roster of HIV-positive AIDS denialists dying after refusing to take medicines that could have saved their lives, and many thousands more deaths resulting from the application of AIDS denialist ideas by the South African government.
Far from advancing the “education of the public”, any organisation which promotes these ideas is disseminating dangerous misinformation. And far from relieving sickness, the promotion of AIDS denialism under the guise of providing health information can have deadly consequences.
The Charity Commission exists to ensure that charities registered in England and Wales benefit the public interest and act in accordance with their stated objectives. However, when contacted about the activities of the Immunity Resource Foundation, the Commission stated that:
We do not have the remit or expertise to judge whether they are providing the correct advice. We can only become involved in matters where our regulatory powers permit us to intervene and unfortunately this issue falls outside of that remit.
The upshot of this seems to be that a registered charity is free to make false, misleading and dangerous scientific claims about a major public health issue – even where this runs directly contrary to the charity’s official objectives – because the government body that regulates charities does not have access to the technical expertise necessary to evaluate such claims.
This seems like quite a big loophole, and also something of a double-standard. Whereas a private business that makes false scientific claims about its products is answerable, at least in principle, to the Trading Standards Institute, it would appear that UK registered charities are currently free to disseminate pseudo-science more or less with impunity.
UK registered charity is an AIDS denial front group
The Immunity Resource Foundation (UK charity 1105986) says that its aims include:
“(I) TO ADVANCE THE EDUCATION OF THE PUBLIC IN THE FIELDS OF MEDICINE, HEALTH CARE AND MEDICAL SCIENCE; AND
(II) TO RELIEVE SICKNESS AND ASSIST SICK AND DISABLED PERSONS …BY PROVIDING THEM WITH ACCESS TO INFORMATION CONCERNING DISEASES AND MEDICAL CONDITIONS (AND IN PARTICULAR AIDS) AND THE TREATMENTS, THERAPIES AND RESEARCH STUDIES RELATING THERETO, AND WITH ADVICE AND SUPPORT;”
But the scientific claims about AIDS published on the organisation’s website are dangerously inaccurate. On this page, Joan Shenton, the organisation’s “Founder and administrator”, suggests that AIDS “is not an infectious disease” and that “HIV cannot cause AIDS”.
The articles linked to on this page all lean in the same direction, and many of them are by known AIDS denialists, notably the discredited virologist Peter Duesberg and the journalists Neville Hodgkinson, Celia Farber and John Lauritsen.
A Harvard study published last year concluded that the adoption of AIDS denial in South Africa by the government of Thabo Mbeki in the early part of this decade had contributed to more than 365,000 preventable deaths. In a speech in 1999, Mbeki had cited “the huge volume of literature on this matter available on the Internet” in support of his position on HIV and AIDS.
Exclusive: Interview with Prof Seth Kalichman, author of “Denying Aids”
Professor Seth Kalichman’s excellent new book, Denying AIDS, is the most comprehensive account yet of the origins and development of a toxic ideology – AIDS denialism. In this e-interview, Seth discusses the book, and the urgent issues that it seeks to address.
RW: Why does AIDS denialism matter?
AIDS denialism matters because it kills people. I know this sounds like drama and hyperbole, but it is true. AIDS denialism creates confusion about the cause of AIDS. when people who need accurate information about HIV/AIDS are exposed to AIDS denialism they might actually believe that there is a debate among doctors and scientists about the cause of HIV when there is no such debate. AIDS denialists tell people that they should avoid HIV tests because they are invalid. In fact, HIV tests are extremely accurate and only rarely misdiagnose people with HIV. Being HIV infected and not knowing your HIV status means that you may not take measures to keep from spreading the virus. In many countries the majority of HIV infected people do not know they are infected. Huge resources are dedicated to getting people at risk for HIV tested. AIDS denialists undermine these efforts. Finally, AIDS denialism matters because it persuades people who have tested HIV positive to refuse HIV treatments. Denialists say that HIV treatments are toxic poison. In fact, HIV treatments are responsible for extending the lives and improving the health of people living with HIV/AIDS. In the US and UK, entire hospital wards that were once for AIDS patients are no longer needed. People with HIV are returning to work and living healthier lives because of treatments. AIDS deniers are trying to reverse this trend and return to days when there were no treatments.
RW: What was the inspiration for “Denying AIDS”?
I have been conducting HIV/AIDS prevention and treatment research in the US since 1989 and in South Africa since 2001. I have known for years that AIDS denialists exist, but like most people I thought that ignoring them would make them just go away. I also thought that very few people were AIDS denialists and that no one would listen to them. I suppose you could say I was denial about AIDS denialism. Like many others, I was very wrong about AIDS denialism. While working in South Africa I became aware of the devastating effects that AIDS denial was having in that country. The former President Thabo Mbeki had enlisted AIDS denialists among his advisors and bought into the idea that scientists are debating the cause of AIDS. Mbeki’s misguided AIDS policies resulted in over 330,000 senseless deaths and 35,000 babies who were needlessly infected with HIV. I was aware of the failure to offer treatment for South Africans living with HIV/AIDS and I knew that AIDS denial was to blame. In 2006 I also became aware of AIDS denialists in the US and UK. I received an email correspondence from someone I knew to be a well trained social psychologist in a teaching position at a respected university. She had written a very positive review of an old AIDS denialist book by Professor Peter Duesberg in California, the most notorious AIDS denialist. This psychologist had posted the book review at the RethinkingAIDS.com website. I was absolutely dumbfounded to learn that someone who I knew to be educated and who I believed to be intelligent had not only bought into AIDS denial but was actively propagating the myths. I started to look at the AIDS denialist literature and found it disturbing and also fascinating. I wanted to learn more about how seemingly intelligent people would come to believe absolute rubbish. So I decided to write Denying AIDS.
RW: What kinds of people become AIDS denialists, and what motivates them?
All kinds of people become AIDS denialists. Most visible are the fringe scientists because they write books and have websites. They are following in the footsteps of Peter Duesberg. Still, AIDS denialists who have academic positions do considerable harm because they create an impression of credibility. There are also rogue journalists who write about conspiracy theories and other sensational pseudo-news. AIDS denialist journalists do considerable harm because they bring AIDS denialism into the public eye. AIDS denialism also has its activists, typically people who have tested HIV positive and buy into denialism as a maladaptive coping strategy. These denialists also have credibility because they appear to be living healthy with HIV and not taking medications. There are even celebrities who support AIDS denialist activism, including the popular rock band the Foo Fighters and comedian Bill Maher. Tragically, AIDS denialist activists have infected their children and others and they themselves die of AIDS earlier than they may have if they accepted treatment. Then there is a large group of people who are prone to conspiracy theorizing, anti-government sentiments, and simply wanting to make mischief. These people are typically Internet bloggers with way too much time on their hands. Many seem not to realize the harm they are causing and most others just do not seem to care.
RW: Who are the key figures in the AIDS denial movement, and what are their ideas?
In my opinion, the key figures include the following people:
Peter Duesberg is the single most important figure in HIV/AIDS denialism because he is the only credentialed scientist who has worked with retroviruses, although not having worked with HIV, to propose that HIV does not cause AIDS. The rock star of AIDS denialism, he holds fast to his flawed ideas. What makes him unique is that he was once a respected scientist and now shows utter disrespect for science by refuting facts in the service of self-promotion.
David Rasnick is Peter Duesberg’s right hand man. Quite literally, in public Rasnick appears to be Duesberg’s personal assistant. At one time, he had a visiting scholar appointment with the Department of Molecular and Cell Biology at UC Berkeley (1996-2005), where he worked with Duesberg, although the university retracted his appointment. Rasnick is a conspiracy theorist, claiming that the US government propagates the ‘myth’ that HIV causes AIDS to allow the pharmaceutical industry. Rasnick served with Duesberg on the now infamous panel of AIDS experts and denialists convened by South African President Thabo Mbeki in 2000. In fact, Rasnick is credited, or blamed, with convincing Mbeki that there is a need for a scientific debate on the cause of AIDS. He also worked with Matthias Rath in conducting what are now ruled unlawful vitamin studies in South Africa.
Kary B. Mullis was a Nobel Laureate and is now among the who’s who of AIDS pseudoscientists. In 1994, Mullis co-authored the essay “What causes AIDS? It’s an open question” and he has appeared in several interviews in which he clearly questions whether HIV causes AIDS. Mullis said, “If there is evidence that HIV causes AIDS, there should be scientific documents which either singly or collectively demonstrate that fact, at least with a high probability. There is no such document.” Mullis is widely held as an eccentric who has shared his experiences, including his abduction by extraterrestrials.
Eleni Papadopulos-Eleopulos, a medical physicist based at the Royal Perth Hospital published a paper in 1988 declaring that HIV had never been correctly isolated as a distinct ‘pure’ virus. Along with Valendar Turner and John Papadimitriou, this group proclaims that HIV does not even exist! Like Duesberg, they say that drugs, poverty, and HIV medications cause AIDS. They also broaden their view by claiming other sources of immune suppression can lead to AIDS, such as repeated exposure to semen among gay men, although seemingly not women. They propose that an oxidation process occurs in response to HIV/AIDS risk factors, such as drug use, malnutrition, and exposure to semen that causes immune suppression and ultimately AIDS.
Etienne de Harven retired from the University of Toronto and having been a Professor of Cell Biology at Sloan Kettering Institute New York from 1956 to 1981. de Harven isolated and conducted electron microscopic studies of the murine (mouse) friend leukemia virus. He was also a member of the 2000 South Africa’s Presidential AIDS Advisory Panel and is a recognized leader among AIDS Rethinkers. He worked as a scientist in his field from the 1950’s until he retired. He challenged the proof that HIV has been isolated, according to the standards laid down by him. de Harven has said, “Dominated by the media, by special pressure groups and by the interests of several pharmaceutical companies, the AIDS establishment efforts to control the disease lost contact with open-minded, peer-reviewed medical science since the unproven HIV/AIDS hypothesis received 100% of the research funds while all other hypotheses were ignored.”
Christine Maggiore was the founder of Alive & Well, and was perhaps the most visible and visited HIV/AIDS denialist website. She tested HIV positive and remained untreated. Her three-year-old daughter Eliza Jane Scovill died of complications of AIDS whereas second opinions state that the death was the result of an adverse reaction to antibiotics. Maggiore founded Alive & Well in 1995 and wrote What If Everything You Thought You Knew about AIDS Was Wrong? Her story was portrayed on the popular US television show “Law & Order SVU” in October 2008. Christine Maggiore died of AIDS just a couple months later in December 2008. She is no longer with us, but her harmful legacy lives on.
Celia Farber is a journalist who has chronicled the Peter Duesberg phenomenon since the late 1980s. She has a personal relationship with Bob Guccione the founder of Penthouse Magazine and owner of Penthouse Media Group, Inc. affording Farber considerable access to the publishing world. In 1987, Farber began writing and editing a monthly investigative feature column “Words from the Front” in SPIN Magazine, owned by Guccione. She has been featured in Discover Magazine, also owned by Guccione. These articles focused on the critiques of HIV/AIDS science. In 2006 she published an article “Out of control: AIDS and the corruption of medical science” in Harper’s magazine which stirred interest as the article represented a breakthrough of HIV/AIDS denialism into mainstream media. The article is also a chapter in her book, Serious Adverse Events: An Uncensored History of AIDS, a collection of her magazine articles, mostly from the 1980s and 1990s. Farber has taken Duesberg on as a cause and in so doing has engaged in several rather nasty exchanges with AIDS scientists, most notably Robert Gallo. Along with Duesberg, Farber received a 2008 Clean Hands Award from the Semmelweis Society for her speaking out about the truth in AIDS. She has most recently filed a libel lawsuit against an HIV treatment advocacy group in New York City.
RW: Some people say that AIDS denial is a fringe ideology, that only affects a tiny group of people. What would you say to that?
I would say that it is true that AIDS denialism is a fringe ideology and that a fairly small group of people are actively involved in propagating AIDS denial. However, there is considerable evidence that that significant numbers of people are affected by AIDS denial. We know that in the US over 40% of Gay men question whether HIV is the cause of AIDS. We know that a majority of people who should be tested for HIV refuse. We know that people turn to the Internet for AIDS information and find AIDS denialism on numerous websites. We know that people are vulnerable to confusing information, especially when it is something that anyone would want to hear, such as HIV is not the cause of AIDS. There is no telling how many people have been harmed by AIDS denialism or how many listen to them. Whether it be thousands or hundreds of thousands who listen to AIDS denialists, we know from the South African experience that if just one person with power to make decisions listens the results can be devastating.
RW: In “Denying AIDS” you make comparisons between AIDS denial and other fringe ideologies – could you tell us a bit more about that?
The similarities between AIDS denialism and cancer denialism, Holocaust Denial, 9/11 Truth Seeking, and Global Warming Denial are striking. All of these groups use the same tactics to create the impression that experts disagree and that the historical record is in dispute. They all use selective information taken out of context that supports their viewpoint. They ignore facts and propel myths. They include pseudo-experts. They rely on conspiracy theories to gain attention. They are persuasive in their rhetoric. They use books to circumvent peer-review, they create their own periodicals, and they produce documentary looking films. They also effectively use the Internet and have manipulated their way into mainstream media. In some cases, they are even the same people! I believe that there is a denialism prone personality that I discuss in Denying AIDS. People who approach the world from a suspicious stance, are anti-establishment, and somewhat grandiose are among those who are prone to denialism.
RW: What is the relationship between AIDS denial and alternative medicine?
Not all AIDS denialists sell alternative treatments, but some do. However, all AIDS denialists pave the path for fraudulent cures and snake oil treatments. AIDS denialist say that HIV does not cause AIDS, leaving open the question of what should be done to treat AIDS? Among the most notorious AIDS denialists are those who sell remedies, such as Matthias Rath and Gary Null who sell vitamins and nutritional supplements they have proclaimed treat HIV/AIDS. Ben Goldacre has written about Matthias Rath’s destructive profiteering in his book Bad Science. AIDS denialists have on occasion worked closely with these vitamin entrepreneurs, as was the case when American David Rasnick and South African Anthony Brink teamed up with Matthias Rath. Of course, many people make well informed decisions and choose to complementary treatments such as nutritional supplements and vitamins as part of their HIV-related health care. Indeed, people may even make informed decisions to forego anti-HIV mediations. I believe we should respect these decisions when they are well-informed. HIV treatments are not for everyone. The problem we have with AIDS denialism is that it misinforms people and steers them away from HIV treatments. People are therefore being deceived by denialism to make misinformed decisions, and that of course is not okay.
RW: What did you come across in the course of your research that especially surprised you?
It surprised me that the AIDS denialists truly believe what they are saying. I had thought that they must be blatant liars and scam artists. Perhaps some are. But I have come to realize that most AIDS denialists really believe that HIV does not cause AIDS. They tend to be paranoid and their suspicious cognitive style bends facts to fit their preconceived notions. I will never forget when Peter Duesberg looked me dead in the eyes and said “You know, there is no vaccine for this; it is not an infectious disease.” I have no question that he believes what he says, as mad as it is.
Seth C. Kalichman is a Professor of Psychology at the University of Connecticut, and the Editor of the journal AIDS and Behavior. His new book is “Denying AIDS: Conspiracy Theories, Pseudoscience, and Human Tragedy”; royalties are donated to buy HIV meds in Africa. http://denyingaids.blogspot.com
Christine Maggiore’s last podcast
Yesterday I listened, in growing disbelief, to the last episode of HIV-positive AIDS denialist Christine Maggiore’s regular podcast, “How Positive Are You?”. The programme is dated December 6th, just 3 weeks before Maggiore’s sudden death from pneumonia, although comments in the podcast itself suggest it was recorded the previous month.
The discussion is co-presented by David Crowe, who early in the programme recounts with pride some of the comments he has received via email. He’s particularly pleased about one from an HIV-positive listener who reads the “Alive and Well” website every day, and who has chosen to disregard his doctor’s advice, forgoing anti-retroviral drugs in favour of eating lots of nutritious food and breathing plenty of fresh air. “Wow, that’s beautiful”, Maggiore gushes.
Later on, Crowe and Maggiore conduct a phone interview with AIDS clinician Dr. Jocelyn Dee, who had (along with several colleagues) advised the makers of the TV drama “Law and Order SVU”. In October last year, the programme featured a fictional tragedy strikingly similar to that which hit Maggiore’s family in 2005, when her young daughter died suddenly from what a coroner later determined to be AIDS-related pneumonia. Maggiore, who was HIV positive, had refused to take medications that would have reduced the risk of transmission to her unborn child, and also declined to have her tested for HIV once she was born. Maggiore disputed the coroner’s report, and insisted that her daughter had in fact died from an allergic reaction to antibiotics. All of these details were echoed in the ostensibly-fictional TV show.
During the interview, Dr. Dee is initially unaware of Maggiore’s background, and of the final shape of the programme for which she had been an adviser; she explains that she found the show too difficult to watch because the subject matter was so close to the situations she saw every day through her work with HIV-positive people. When Maggiore finally reveals the full facts, Dee seems shocked yet sympathetic.
To hear Maggiore calmly recount the details of a programme so obviously based on her own life is chilling enough. But the most painful moment comes when she ridicules the fact that, in the fictionalised version of her life, the story ends with the denialist mother dying suddenly from an AIDS-related illness. Maggiore wonders aloud whether this might have been some kind of ‘wish fulfilment’ on the part of those who despise her refusal to accept the conventional view of HIV and AIDS.
Throughout the programme Maggiore seems lucid and eloquent. She was clearly a highly intelligent person who believed passionately that she was doing the right thing – which of course made her all the more dangerous. I’m not sure I’ve ever seen a starker illustration of how far a well-structured, well-intentioned, well-expressed, and internally consistent argument can take you, even when your basic facts are nonetheless catastrophically flawed. Tragically there are some facts that no amount of nuanced, intelligent argument can refute, or psychoanalyse away.
See also: The parallels between AIDS denial and Holocaust negationism
“Children must never play with matches”: Ophelia Benson on the folly of amateur medicine
It’s good to question conventional wisdom, except when it isn’t. Conventional wisdom holds that a bridge designed by engineers and built by reputable builders is safer to drive across than one designed by shamans and built by hairdressers. Questioning that conventional wisdom is not really all that productive, and if anyone listens to the questioning, it’s downright lethal.
So with Christine Maggiore.
Until the end, Christine Maggiore remained defiant.On national television and in a blistering book, she denounced research showing that HIV causes AIDS. She refused to take medications to treat her own virus. She gave birth to two children and breast fed them, denying any risk to their health. And when her 3-year-old child, Eliza Jane, died of what the coroner determined to be AIDS-related pneumonia, she protested the findings and sued the county.
That’s the risky kind of questioning conventional wisdom – and it risks other people as well as oneself. That’s why Prince Charles makes me angry when he indulges his passion for denouncing non-alternative medicine, and it’s why Juliet Stevenson made me angry when she used her celebrity to denounce the conventional wisdom about the MMR vaccine and autism, and it’s why Christine Maggiore makes me angry even though she’s now dead. It makes me angry that she breast-fed her children and it makes me angry that she went on television to denounce research showing that HIV causes AIDS. People shouldn’t do that. People shouldn’t take on life and death medical issues when they have no training or expertise in the subject. People shouldn’t trust their own judgment that completely.
For years, the South African government joined with Maggiore in denying that HIV is responsible for AIDS and resisting antiretroviral treatment. According to a new analysis by a group of Harvard public health researchers, 330,000 people died as a consequence of the government’s denial and 35,000 babies were born with the disease.
It’s not a subject for hobbyists or cranks or princes or actors. Children must never play with matches.
See also: The parallels between AIDS denial and Holocaust negationism
AIDS sceptic Celia Farber on the death of Christine Maggiore
From Dean’s World
The news has been shattering to all who loved her around the world. Speaking for myself, I can say that Christine Maggiore was one of the strongest, most ethical, compassionate, intelligent, brave, funny, and decent human beings I have ever had the honor to know. I spoke to her in great depth about all aspects of life, death, love, and this battle we both found ourselves mired in, and I will be writing about her and about those conversations here, in the future. No matter what she was going through, and it was always, frankly, sheer hell–every day of her life, since 2005, she faced, acute grief, sadistic persecution, wild injustice, relentless battle, and deep betrayal–she was always there for her friends, and she never descended to human ugliness. She always tried to take the high road. She always tried to be stronger than any human being could ever be asked to be. I feared for her life, always. I feared the battle would kill her, as I have felt it could kill me, if I couldn’t find enough beauty to offset the malevolence. This is a deeply occult battle, and Christine got caught in its darkest shadows.
She had apparently been on a radical cleansing and detox regimen that had sickened her and left her very weak, dehydrated, and unable to breathe. She was shortly thereafter diagnosed with pneumonia and placed on IV antibiotics and rehydration. But she didn’t make it.
Those who loved her, as I did, have our own interpretations of what ultimately killed her–a combination of unrelenting heartbreak and the effect of being subject to a constant, unrelenting media driven hate campaign, despite the complete legal clearing of her name in the death of her daughter Eliza Jane in 2005, who died after taking an antibiotic, and whose cause of death has been tortuously debated. Christine and her husband Robin were denied the right to adopt a child, or foster a child, due to a single article in the L.A. Times which cast her as a murderer.
More reaction to the death of Christine Maggiore
From the Los Angeles Times
It is admittedly difficult to spot the moment when a scientific theory becomes an accepted fact. It took hundreds of years for the Catholic Church to acknowledge the work of Galileo, and it still flinches at Darwin. Meanwhile, the rest of the sentient universe long ago accepted that the Earth orbits the sun, and all but the most determined creationists see the undeniable evidence of evolution at work. Still, science is a discipline of questions, and rarely is a fact established so firmly that it will silence all critics. At the Creation Museum near Cincinnati, the exhibit guides visitors “to the dawn of time” — just 6,000 years ago. That makes for some startling conclusions, not the least of which is that dinosaurs and humans were created by God on the sixth day and lived side by side. Call it the Flinstones theory.
Of course, new questions inevitably emerge from new inquiry and new data. How, then, to judge when a theory becomes fact, when it slips beyond legitimate objection? The test lies in balance: A preponderance of evidence accumulates on one side or the other. Those who contest that evidence must demonstrate the plausibility of alternatives and produce evidence to support them. If the alternatives are implausible, they melt away. Eventually, there is nothing left to uphold the view that the sun is circling the Earth or that natural selection is a secular myth.
In some instances, these debates are interesting but not terribly consequential. But sometimes they are of staggering significance. When the theory in question is about the cause of climate change or AIDS, misplaced skepticism, whether cynical or well-intentioned, can lead to grave results. For years, the South African government joined with Maggiore in denying that HIV is responsible for AIDS and resisting antiretroviral treatment. According to a new analysis by a group of Harvard public health researchers, 330,000 people died as a consequence of the government’s denial and 35,000 babies were born with the disease.
Determined to reject scientific wisdom, Maggiore breast-fed her daughter. Eliza Jane died in 2005, at the age of 3. The L.A. County coroner concluded that the cause of death was AIDS-related pneumonia. Maggiore refused to believe it.
Author Seth Kalichman offers hefty reward to anyone who can prove the existence of David Crowe
From Denying Aids
Blind romantics still believe that Rethinking AIDS Society President David Crowe actually exists.
But if David Crowe has never been met in person, does he really exist?
Never met in person?
You bet!
I know there are pictures of David Crowe, but are they really him? Do they meet my standards of real photo identification?
Or is that just an actor playing David Crowe in the AIDS denialist videos we see?
David Crowe has a website, but that could be anyone.
David Crowe writes articles for online health food magazines, but there is a conspiracy among naturalists, the vitamin industry, and the herbal medicine cartel that keeps the David Crowe myth going.
Go ahead, prove me wrong.
I am offering a free copy of my book Denying AIDS to anyone who can PROVE that David Crowe exists.
An “unmitigated tragedy”: Los Angeles Times reports the death of leading HIV-positive AIDS-denialist Christine Maggiore
From the Los Angeles Times
Until the end, Christine Maggiore remained defiant.
On national television and in a blistering book, she denounced research showing that HIV causes AIDS. She refused to take medications to treat her own virus. She gave birth to two children and breast-fed them, denying any risk to their health. And when her 3-year-old child, Eliza Jane, died of what the coroner determined to be AIDS-related pneumonia, she protested the findings and sued the county.
On Saturday, Maggiore died at her Van Nuys home, leaving a husband, a son and many unanswered questions. She was 52…
Jay Gordon, a pediatrician whom the family consulted when Eliza Jane was sick, said Monday that Maggiore’s death was an “unmitigated tragedy.”
“In the event that she died of AIDS-related complications, there are medications to prevent this,” said Gordon, who disagrees with Maggiore’s views and believes HIV causes AIDS. “There are medications that enable people who are HIV-positive to lead healthy, normal, long lives.”
Diagnosed with HIV in 1992, Maggiore plunged into AIDS volunteer work — at AIDS Project Los Angeles, L.A. Shanti and Women at Risk. Her background commanded attention. A well-spoken, middle-class woman, she was soon being asked to speak about the risks of HIV at local schools and health fairs. “At the time,” Maggiore told The Times in 2005, “I felt like I was doing a good thing.”
All that changed in 1994, she said, when she spoke to UC Berkeley biology professor Peter Duesberg, whose well-publicized views on AIDS — including assertions that its symptoms can be caused by recreational drug use and malnutrition — place him well outside the scientific mainstream.
Intrigued, Maggiore began scouring the literature about the underlying science of HIV. She came to believe that flu shots, pregnancy and common viral infections could lead to a positive test result. She later detailed those claims in her book, “What if Everything You Thought You Knew About AIDS Was Wrong?”
Maggiore started Alive & Well AIDS Alternatives, a nonprofit that challenges “common assumptions” about AIDS. She also had a regular podcast about the topic.
Her supporters expressed shock Monday over her death but were highly skeptical that it was caused by AIDS. And they said it would not stop them from questioning mainstream thinking…
Scienceblogs and Neurologica have more background on this tragic case.
See also: “Against the evidence”
The parallels between AIDS denial and Holocaust negationism
In “Don’t Get Fooled Again” I look at the twin delusions of AIDS denial and Holocaust negationism, and examine some of the parallels between them.
AIDS denialists – who will often describe themselves as “AIDS dissidents” or “AIDS sceptics” – are those who deny the overwhelming scientific evidence that HIV causes AIDS. They may believe that HIV is harmless, or deny that there is evidence the virus even exists. In the early 1980s, soon after AIDS was discovered, the psychiatrist Casper Schmidt suggested that the disease was a “group fantasy”, the product of an ” epidemic of shame-induced depression” among gay men, caused by “a vast, society-wide conservative swing” culminating in the election of Ronald Reagan. “One can only hope”, Schmidt concluded, “that we wake up from the trance, and soon”. As with many of the most vocal “dissidents”, Schmidt’s denial seems to have motivated, in part, by a refusal to acknowledge his own illness. Tragically, Casper Schmidt died from AIDS in the mid-1990s – yet even now some die-hard denialists continue to cite his work in support of their claims.
Towards the end of the 80s, amid growing evidence that AIDS was killing thousands, the US virologist Peter Duesberg began challenging the scientific consensus that the disease was caused by a virus, HIV. Duesberg’s work with retroviruses – the class to which HIV belongs – had led him to conclude that all such viruses were essentially harmless. Rather than revise this view in the face of strong and growing epidemiological proof of a close correlation between the presence of AIDS and HIV infection, Duesberg chose instead to reject the new evidence and hang on to his old theory – a position he has stuck to ever since.
Duesberg’s arguably most poisonous claim is that AIDS can in fact be caused by the medications given to HIV sufferers to control the disease, such as the drug AZT. It was partly under Duesberg’s influence that the South African government of Thabo Mbeki chose to delay the public availability of anti-retroviral drugs – a decision which, according to a recent Harvard study – may have cost over 300,000 lives.
Holocaust negationists deny some or all of the established historical facts about Nazi atrocities during World War II. They may refuse to accept that the Holocaust happened at all, or they may – as David Irving has done – concede that atrocities took place but deny that the extermination of Jews and other minorities was a deliberate organisational policy, authorised at the highest level. They may, like Irving, significantly downplay the number of people who died at the hands of the Nazis. Or they may engage in “moral negationism”, acknowledging that Germany persecuted Jews but suggesting that the war-time abuses committed by Soviet or British forces could somehow cancel or diminish the moral gravity of Nazi crimes. Many of these kinds of arguments can be seen in the comment responses to the piece that I wrote about David Irving here.
David Irving has famously denied that he is a Holocaust denier – and went so far as to sue the writer Deborah Lipstadt for having described him in those terms. Some of this seems to come down to semantics. If we define a “Holocaust denier” as someone who is in denial about the established historical facts relating to the Holocaust, then even someone who acknowledges some level of atrocity – as David Irving does – would nonetheless fall into that category.
After a lengthy court battle in which Irving’s historical writings were examined in fine detail, the libel suit against Deborah Lipstadt famously failed, with the judge concluding that:
Irving has for his own ideological reasons persistently and deliberately misrepresented and manipulated historical evidence; that for the same reasons he has portrayed Hitler in an unwarrantedly favourable light, principally in relation to his attitude towards and responsibility for the treatment of the Jews; that he is an active Holocaust denier; that he is anti-Semitic and racist and that he associates with right-wing extremists who promote neo-Nazism.
Irving has sought to portray himself as a fearless and impartial historical investigator, motivated solely by a desire to establish the truth, bravely challenging the orthodox account of the events of World War II. But the Lipstadt libel trial revealed quite the opposite. Driven by a preconceived attachment to an extreme ideological position, Irving had systematically abused the truth, deliberately misrepresenting his historical sources in order to make them support his political views.
Appearing as an expert witness, the historian Richard Evans, who had painstakingly reviewed Irving’s work, confessed to being shocked at the “sheer depth of duplicity” he had found. Irving had, Evans concluded, “fallen so far short of the standards of scholarship customary among historians that he doesn’t deserve to be called a historian at all”, suggesting that Irving relied on his audience lacking “either the time or the expertise” to check up on his sources.
Another feature of Irving’s work is his tendency to seize on tenuous reinterpretations of the existing evidence and treat them as a knockdown refutation of the claim he is attacking. Irving has argued that forensic tests taken by an unqualified investigator on the walls of the Auschwitz gas chambers in the late 1980s proved that they could not have been used for mass-executions, later claiming that “more women died on the back seat of Edward Kennedy’s car at Chappaquiddick than ever died in a gas chamber in Auschwitz”.
Irving also applied a clear double-standard in his evaluation of the evidence. At the same time as he embraced tenuous forensic tests taken more than 40 years after the end of the World War II, he was dismissive of the detailed eyewitness testimonies of the thousands of Holocaust survivors still alive at the time.
We see a similar double-standard with many of those who deny the link between HIV and AIDS. A 3-month investigation by Science magazine found no evidence to back Duesberg’s claims. Mainstream AIDS researchers accused him of constructing his arguments through “selective reading of the scientific literature, dismissing evidence that contradicts his theses, requiring impossibly definitive proof, and dismissing outright studies marked by inconsequential weaknesses.”
One big problem faced by both AIDS denialists and Holocaust denialists is the difficulty of explaining why their arguments are almost universally rejected. Here again, the rhetoric is often striking similar. Hardcore AIDS denialists insist that the disease is a “hoax”, a “myth”, and a “deceptive and deadly scam” perpetrated by the “medical industrial complex”, and offer us “Ten reasons HIV is not the cause of AIDS”. Hardcore negationists, meanwhile, talk dismissively about the “Holohoax”, which they describe as a “myth”, perpetrated by “Zionists” with an “agenda of world domination”, and offer us “Ten reasons why the Holocaust is a fraud”.
AIDS denial on the retreat…
When I was writing “Don’t Get Fooled Again”, Thabo Mbeki was still President of South Africa, with the extraordinary Manto Tshabalala-Msimang as his minister of health. AIDS denial was still exerting its malign influence after reaching a high point in 2000, when Mbeki had – to the delight of AIDS denialists the world over – invited a number of self-described “dissidents” to join his advisory panel on HIV and AIDS.
Abrupt change came only this September, with Mbeki’s ignominious exit from office, and the replacement of many of his closest allies. South Africa’s new health minister Barbara Hogan has stated unequivocally that HIV is the cause of AIDS, and ordered decisive action to tackle the disease.
In October, to the further consternation of the small but vocal group who continue to deny that HIV exists, the virologist Luc Montagnier was awarded the Nobel Prize for Physiology and Medicine for his discovery of the virus during the early 1980s.
Workers in South Africa yesterday observed a minute’s silence on World AIDS Day, in memory of the hundreds of thousands who have died from the disease.
Harvard study blames Mbeki’s AIDS denial for 330,000 deaths
In “Don’t Get Fooled Again” I trace the growth of the insidious cult of AIDS denial, from its origins in the US in the early 1980s, to the moment it was embraced by the South African government of Thabo Mbeki.
The economist Nicoli Nattrass has estimated that 340,000 lives could have been saved had Mbeki not blocked the distribution of lifesaving drugs, under the influence of AIDS “dissidents” including the virologist Peter Duesberg, who insists that HIV does not cause AIDS and is harmless.
Now a study by the Harvard School of Public Health has arrived at a very similar figure, estimating the death toll resulting from Mbeki’s decision to withhold the drugs as “more than 330,000”. The prominent South African HIV treatment access campaigner Zackie Achmat has called for Mbeki to be held to account for his government’s failure, either through a judicial inquiry, or a revived “Truth and Reconciliation Commission”.
South African government turns its back on AIDS denial
Hot on the heels of the resignation of President Thabo Mbeki – and the removal of his notorious Health Minister Manto Tshabalala-Msimang, the South African government has drawn a line under the era of AIDS denial that began soon after Mbeki’s accession to the Presidency in 1999.
President Motlanthe’s new Health Minister, Barbara Hogan, who was reportedly one of the few MPs to speak out on HIV and AIDS during Mbeki’s time in office, made a speech at an international AIDS vaccine conference in Cape Town in which she stated unequivocally that HIV causes AIDS, and that time had been lost in the struggle against the disease.
“Don’t Get Fooled Again” reviewed in the Guardian by Steven Poole
Review in The Guardian by Steven Poole
There’s always somebody trying to pull a fast one, but we can help ourselves. “The antidotes to delusion are logic and evidence, preferably from multiple sources.” The author hopes to give us the tools to avoid being fooled by “pseudo-news”, as well as pseudo-experts, and pseudo-conspiracy theories. Confusingly, many of the people we ought to be sceptical of pretend to be sceptics themselves. The giveaway, as Wilson nicely shows, is that their scepticism is asymmetrical: no evidence is ever enough for someone “sceptical” about anthropogenic global warming (an example not included in this book), and yet they are remarkably credulous about any alternative factoids that might seem to support their own view.
Wilson ranges somewhat loosely over examples contemporary and historical: anti-Aids science in South Africa, Lysenko’s pseudo-agriculture, David Irving’s Holocaust denial, Richard Dawkins’s atheism, and torture at Abu Ghraib, explaining psychological ideas of selection bias and groupthink along the way. He alludes to the X-Files slogan “I want to believe” as an example of dangerous thinking, but to be fair they also say “Trust no one.”
Atom smashing with Neil Denny
There’s no radio show quite like Little Atoms, which broadcasts on Resonance FM from a small studio near London’s Borough Market. In the last few years Neil Denny has interviewed an impressive line-up of leading sceptical thinkers, from Francis Wheen and Alain de Botton to Ben Goldacre, Julian Baggini, Jon Ronson and Stewart Lee.
It was an honour to be on the show, and a pleasure chatting to Neil about Don’t Get Fooled Again, discussing the weird cult of AIDS denial (148 comments on my New Statesman article and counting, with the debate still raging three weeks after it was published), the extraordinary Booker-Bridle asbestos love-in, and lots more besides. The interview should be available online in the next few days, so I’ll post the link when it appears.
Attack of the AIDS denialists…
My recent piece on “bogus sceptics” in the New Statesman drew some impressively prompt brickbats from the AIDS denial 24-hour rapid response unit. I particularly liked this one:
Do yourself a favor, before you insert your foot in your mouth again. Richard, check out the blog of a professor who investigates pseudoscience, who recently FULLY researched hiv/aids and found himself fully in agreement with Dr. Duesberg, at hivskeptic.wordpress.com.
Or read Professor Duesberg’s books.
You will find upon your own research that the years of high death said to be due to hiv are the EXACT YEARS of high dosage AZT.
You will find that NO test finds verified HIV.
You will find that the HIV tests are proven to often go off with 70 different PROVEN factors.
You will find that there is NO proof that HIV is the cause of AIDS.
You will find that the leading cause of death in HIV positives in the west, is and always has been in those who take the HIV drugs.
No fool like an old fool, Richard. Surely you are not too old to learn something new! And being an obviously closed minded dogmatist yourself, perhaps it is time to come out of your little eggshell and wake up and smell the coffee, and at least admit that you are far from being any kind of a knowledgeable purveyor of truth yourself.
I’ve done my best to respond on the article itself, but I thought it might also be useful to post a link here to one of the most comprehensive summaries I’ve seen of the evidence linking HIV and AIDS, from the US National Institute of Health.
“Against the evidence” – New Statesman piece
The New Statesman has just published an article I’ve written, coinciding with the publication of “Don’t Get Fooled Again” (a version read by a strange robotic voice can be found here…)
Throughout the 1960s, the tobacco industry famously spent millions promoting a small group of vociferous “sceptics” who, in the face of overwhelming evidence, continued to deny the link between smoking and cancer. The strategy paid off. Long after a clear scientific consensus had emerged, much of the public still believed that the case remained unproven.
In a sceptical age, even those disseminating wholly bogus ideas – from corporate pseudo-science to 9/11 conspiracy theories – will often seek to appropriate the language of rational inquiry. But there is a meaningful difference between being a “sceptic” and being in denial. The genuine sceptic forms his beliefs through a balanced evaluation of the evidence. The sceptic of the bogus variety cherry-picks evidence on the basis of a pre-existing belief, seizing on data, however tenuous, that supports his position, and yet declaring himself “sceptical” of any evidence, however compelling, that undermines it.
While it is easy to guess the motivations of an industry-funded scientist denying the dangers posed by his commercial sponsor, or a far-right historian expressing “scepticism” about the Holocaust, other cases are more puzzling. It is difficult to explain why, for example, a respected academic would dismiss the mountain of proof that HIV causes Aids. But several have, notably the Berkeley virologist Peter Duesberg.
HIV is a type of “retrovirus”. Duesberg has argued for decades that retroviruses rarely, if ever, harm their hosts. Rather than modify this theory in the light of evidence that one such virus was killing millions, Duesberg in the late 1980s announced his “scepticism” about that evidence, and has stuck to his guns ever since.
Early on, these ideas found a receptive audience among HIV sufferers, desperate for an alternative prognosis. The cause was later taken up by conspiracy theorists convinced that Aids was a money-spinning fabrication of the global pharmaceutical industry.
In South Africa, at the beginning of this decade, Aids scepticism gained currency with a political class dismayed at the prices being charged for life-saving medicines. Under the influence of Duesberg and his fellow “dissidents”, Thabo Mbeki’s government chose to delay for several years public provision of anti-HIV drugs. The economist Nicoli Nattrass estimates that this decision – made amid one of the world’s worst Aids epidemics – may already have cost hundreds of thousands of lives.
Bogus scepticism does not centre on an impartial search for the truth, but on a no-holds-barred defence of a preconceived ideological position. The bogus sceptic is thus, in reality, a disguised dogmatist, made all the more dangerous for his success in appropriating the mantle of the unbiased and open-minded inquirer.
Richard Wilson’s “Don’t Get Fooled Again” is out now, published by Icon Books (£12.99)
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